Hello, my name is Justin Tobler and I am the father of Kody Tobler, our miracle boy. Kristy Howard is his mother. He also has three sisters: Kyla, Jessica and Destiny.
The purpose of this blog is to raise awareness for gastroshisis and also short gut syndrome. It also lets otter families know that they are not alone in this fight for our kids’ survival. This disease is more common that was previously thought; it has an occurrence of 1 in 4,000 and a percentage of these end up with short gut syndrome. We are tying to save our kids by involving the government more in financial support for our kids as treatment is costly.
The more we pull together and work collectively for our kids the more we can see a better future for our kids and us as their families. We are also trying for small intestine transplants to be available in Australia, as many of our kids have limited chance of survival under the current policy. The cost of getting our kids overseas for this treatment is an option that many of us can’t afford; our government is placing a prohibitative cost on our kids’ lives.
This will also be a blog of some of the daily events in our lives as a family that lives with this disease. Thank you for connecting with us. We hope that sharing this information and sharing our lives with you may help. We also hope that you may share with us in this challenge. Nobody needs to be alone.
Justin – everyone calls me Jay
We are holding a $2 sauage sizzle to raise money for Kody Tobler .
Tough Tobler - miracle boy 