About

The purpose of this blog is to raise awareness for gastroshisis and also short gut syndrome.  It also lets other families  know that they are not alone in this fight for our kids’ survival.   This disease is more common that was previously thought; it has an occurrence of 1 in 4,000 and a  percentage of these end up with short gut syndrome.  We are tying to save our kids by involving the government more in financial support for our kids as treatment is costly.

This will also be a blog of some of the daily events in the  lives of Justin, Kristy, & Kody  and the rest of their family that live with this disease.